Thyrants, October 24-31

Twitter:

@christinah84 Shouldn’t the fatigue and foggy brain go away once my TSH is on a healthy level?

@Yodat I think my thyroid is having an identity crisis.

@christinah84 The worst thing about my disease to me is that I’m constantly reminded of it. Not one day passes without saying the word “thyroid”.

Facebook:

Sarina Favazza-Bray “Thyrant” isn’t the word for it: not only did I have a wrong diagnosis, two sonograms, painful biopsy, report read wrong ‘till third opinion, two surgeries before they the found the first cancer, thyroid and cancer taken out, bad infection on scar, cat scan with and with out contrast, NOW I have recurring cancer in the lymphnode in my neck. What the fuckin’ hell is going on?? Come on now, I’ve had enough — NO THYROID HERE!!!!!!! How am I supposed to deal? Oh lets not forget LAST WEEK the pill with iodine, cat scan for that, now I have to have a mega dose of radiation (pill form) and all this to ablate the lymphnode cancer, and have to be isolated in the hospital for three days and no hugs and kisses from family, no sleeping together, separate eating utensils and showers and bathrooms, NO GRANDBABIES AROUND and all this with NO THYROID!!!! COME ON NOW WHOSE STUPID ASS JOKE IS THIS ANY WAY!?? HAPPY FRIKEN HALLOWEEN…

Cassandra Boykins My life is becoming a thyrant. thank you for my thyrage today. I almost bit my boss’s head off. Good thing he was on the phone, otherwise I would have been written up.

Liz Schau i feel like my immune system has been in retrograde these past three days, so thyroid, you get a break from my criticisms for now. I’m mad because all my hard work has been set back a few more weeks. I want to blame the Florida humidity for the problems I’m having, but who the hell knows anymore.

Sandy Savino Sieglaff I am sooo tired of the “thyroid cancer is the good kind to get”!! Oh yeah sure, it’s great to have a seven hour surgery, have your neck sliced open five”, go hypothyroid, have radioiodine and be secluded for at least three days. Let’s not forget the joy of constant bloodwork, losing 1/3 of my hair, exhaustion, the ridiculously dry skin after 30+ years of oily skin. Of course there is the ever-looming fear of being told the cancer is back and having to go through another surgery. Oh what a good cancer. Please dismiss my fears and pain because you don’t freakin’ understand it!

Billie Jean Doty Just found an Endo who came highly referred. Called his office to make an appt. He takes no insurance but will gladly take CASH. Didn’t schedule new appt. visit. Must wait for lottery win!

Zari Absaroka Well done! I’m writing to my immune system. You know the one that turned my thyroid into a homicidal maniac that had to be killed in self-defense. Not to mention a bunch of other bad things you’ve done over the years. But this time… my wife got really sick so I took care of her for a week. And I didn’t get sick at all even though she was coughing all over me when she could find the strength. You, immune system, slaughtered the attacking germs and the survivors fled screaming.

 Now just do me a favor. Go back to sleep until the next time the germs come to town, and don’t start any more bar room brawls with my own body.

Thyrants, October 17-24

 

Twitter: 

@Yodat No amount of caffeine can help my motivation today — all I got was more tired and more jittery.

@christinah84 I’m not craving any kind of sweets anymore. That’s sad. I want to want to have chocolate again.

@lejeal Thyroid, can I please have the same problem @christinah84 is having with chocolate and sweets?

Facebook:

Robyn Davis Hahn I didn’t rant last week because I was doing well and didn’t want to jinx it. This week, though, less energy, lump in throat feeling increasing — sigh.

Sarina Favazza-Bray Third week out from thyroid cancer surgery and I feel weaker as each day goes by, but yesterday I went for my cat scan to see if any residual cancer left.  They had my tests all screwed up at the hospital so I wasted four hours waiting ‘till they cancelled everything ‘till Monday so they could get their shit together. Already have the cancer in my thyroid against me now I have the doctors all screwed up too.

Billie Jean Doty Been on a 1200 cal diet for 2 1/2 months pretty faithfully. Lost 6 whole pounds. WTF? If I don’t stay on it, I’ll probably gain it all back in a week. Thank you thyroid disease for that.

Kathleen Taylor I’ve been told that my thyroid has shrunken, but this week it sure feels like someone is pressing their thumbs on my windpipe. I start a conversation and in the middle feel like I can’t catch my breath. This wheezing is for the thyenas!

Rebekah McAlinden Exercise sure knows how to kick your arse, thyroid. Sucks to be you!

Cassandra Boykins Congrats thyroid you fooled me again. My appointment for Dr. B was THREE days ago. You trickster.

Thyrants, October 10-17

Twitter:

@Yodat Was feeling freakin’ AWESOME, until the pharmacy told me they are out of my Armour dosage. To the Dr. I go – Hi HO!

Facebook:

Kathleen Taylor Up at 2:30 this morning… so disoriented, I could not figure out where I was. Who was that other person in the bed?! I could not find my way out of the bedroom. It was like the power was off! I could not see a thing. I felt like I was blind. Did I have a bad dream or something? By the time I found the doorknob and got out of the bedroom, I was in a panic state. What the hell?! Wheezing up a storm for days now, and have been using my inhaler. It’s not helping. I cannot stand the thought of having to go on Prednisone. Why the heck am I wheezing?! Levothyroxine and Atenolol for BP is not a good combo. I have been up since 2:30 and have to be at work until 9:00 tonight on a teleconference. I had to come home and try to take a nap so that I can go back and be awake. This is going to be a bad cycle. Bleah!

Billie Jean Doty I was up @ 2:30 yesterday am — got up, disoriented, same old, same old… sound like a croaking frog and swallowing around that golf ball in my throat; but since my TSH is “normal” (2.94,WTF?) doc says all is well…

Natasha Kahn I screwed up my meds by accident. I was sick and I just didn’t realize what I was doing and now I am paying for it. I am so mad at myself!!!! >:

Rebekah McAlinden Bek feels like crap. Bek hates her thyroid. Bek wants to fall into oblivion and pretend all this junk isn’t happening. Truth.

Laura Chen Tough week, no tough month! Feel like crap! I’m sure I look like crap! Can’t get out of bed before noon! Want to do stuff, can’t! No desire to even put on makeup! Ugh! Do I double my meds now, lets see if that will work, or do I just stop them all just like Oprah!? Oh!!!!!!!!!!!!!!!!!!! The world can’t see me like this! Someone, somebody, something HELP!!!!!!!!!!!!!!!!!!!!!!

Amy Elizabeth Parker My sister got some lab results… free t3 is out of range. She see her (and my) doc in two weeks for discussion. First me and now her. Poor dear! Makes sense with some of her symptoms but it SUCKS!

Manda Richardson I have Hashi’s and my doc’s now diagnosed Fibromyalgia and M.E. but I’m worried it’s a cover-up! And think the problem may still be thyroid / adrenals and will just be overlooked now with the Fibro diagnosis to explain away all my ongoing symptoms. Grrrrrr.

Lori Caprio Callahan I have Hashi’s also and over the last 7+ yrs I have been diagnosed with Polyneurpathy in both legs, Complex Regional Pain Syndrome in both legs, Narcolepsy, OSA, and Fibromyalgia. ALL symptoms of all these diagnoses are improving dramatically as my thyroid is coming under control. They wanted to implant a neurostimulator device in my back to control the pain. I said no, I knew it could all be explained by something, I just didn’t know what but I was going to find it.  Then they thought I was crazy. HOW can medicine be so STUPID — ALL of it is related or dramatically worsened by my thyroid. I changed my profile pic to a dancing pig today to celebrate the medication that I believe will my answer. I’m just beginning to feel awake today!!! I can’t wait to see how it all unfolds!!!

Natasha Kahn Why is it so hard to get a doctor’s appointment? When I last saw my endocrinologist she said to make an appt in 12 weeks. My next appt is 12/10. Something has come up at work that I can’t miss that day. When I called to re-schedule the appt they could only give me Jan 21 as the soonest appt. January! My endo is only at this office on Thursdays and my insurance won’t cover me seeing her at other offices. I don’t want to wait 4 months before seeing my endo because things are not going spectacularly. My choices are: miss something important at work or wait until January. It’s so frustrating! Why is it so hard to get seen by a doctor?!?! >:

Joyce Jordan Corley I had insomnia for 2 months. Yesterday my body decided that it had had enough and is now going the opposite direction. I am exhausted. I guess now my body is going to try to make up for the lack of sleep. Can there be any in between?

Annie Rz Oh- Oh- feeling low… I woke with a migraine headache and upset stomach this morning.  This year is crazy teaching 648 elementary students per week all come with their own sets of problems! NO WAY was I going to make it to school. I called for a substitute and was able to get a few things done that I have been putting off (telephone calls/bank run and groceries).  So now I can relax for the weekend and the headache is gone! I took a 40-minute HOT shower this morning!!

Diane Fama So had a night with the girls and we got to talking about hypothyroidism and my journey – and then I thought I was finally getting through to one of them. I explain how I don’t have a thyroid and I have to take natural dissected thyroid meds and I explained my body needs t1, 2, 3, 4 and Calctonin and I explained my adrenal fatigue and how there were days I could not do anything, to where I got the response — “oh I have days like that and it’s really just mind over matter and if you do that you will be fine”.  I got so exasperated and I looked at her and I said, “do you understand if I don’t take the right medicine I will DIE that everything shuts done, not in a week but it will happen?” I still think she doesn’t get it.

Thyrants, October 3-10

Twitter:

@EAWake Sick and tired of freezing and sweating at same time!

Facebook:

Robyn Davis Hahn I feel like poop. I am on the WHEENIEST amount of Synthroid and had been feeling very HYPO. Two days into a miniscule increase — heart rate up 20 bpm, hard beats, anxiety. Seriously? Over 12.5 mcg? I’m not sure if that means I need a different drug (Levoxyl? Armour?), or if my system is just that sensitive. Whah, whah, whah. Rant over.

Billie Jean Doty I’m trying to figure out a way to carry my bed around with me, like to work, without getting in trouble. Brain Frog/exhaustion/swelling bad this week and as to this eating it raw stuff, that raw turnip I just cut up and ate has done quite a number on my bowel loops.  Thanks for that.

Sarina Favazza-Bray New to all this. One week out — thyroid cancer — and now a nasty scar that looks like a chainsaw taken to my neck. I am on tons of vitamins and my heart rate was in the 140 range yesterday. Went to the ER, now on Digoxion to slow it down, all because of the removal and hormones. I’m tired but have insomnia so I don’t sleep, just lay around, so miserable. What am I in for??

Annie Rz Oh ya know, my fingers actually “peel” more so on my thumbs.  Such DRY skin. The endocrinologist just says, “Oh, that, just… blah blah blah.” I have turned to this peeling when I am nervous. Also, wash hands lots — work with young art students!

Sarina Favazza-Bray Well lets see, two surgeries in two weeks, heart flutter problems, a-fib, and today a visit with doc cause puss is in the incision. So how your week?!? ‘Cause mine sucks!

Billie Jean Doty Getting pretty damn tired of feeling pretty good only to have a thyroid crash and the need to nap in my car on my lunch hour.

Joyce Jordan Corley I’m tired of not getting to sleep until midnight, then by 4 in the afternoon I can’t hold my eyes open. I actually fell asleep at my desk today. Sitting straight up, hand on the mouse. Then I almost fell asleep driving home. Plus the extra 10 pounds I have gained in the past month really make me feel great.

Kathleen Taylor I squashed you a little bit while I was away on my trip, ‘til you tried to sneak thru in mood swings and sleeplessness. I hid it, but it was there in my head. What now?! Do you think that you’re trying to get even with me by making me so achy and tired that I can’t even get up to go to bed? The gassiness from the ibuprofen propels me from the bedroom door right into the bathroom. I’m tired from all this running around. You hear me?! I’m tired!

Rebekah McAlinden I can’t seem to shake this stupid cold. Stupid thyroid fucking with my stupid immune system.

Sarina Favazza-Bray Oh what am I looking forward to in the coming years?? Scary, just like it’s Halloween everyday… without the candy

Robyn Davis Hahn I got one for you. Thyroid — you suck. I was on 50 mcg of Synthroid–BABY DOSAGE — and you made me hypER. Cut the dose in half and guess what? My latest labs say I’m more hypO than before starting treatment! No wonder I feel like shit!

Hans-Dieter Honscheid Thyrant: So my thyroid cancer reared its ugly head this week through an uptake on a scan. Growing things is wonderful in the garden, but not in your body; that is unless your last name is Uterus, then, of course, it’s called bundle of joy.